Newborn Screening Education: A Survey of Ontario Mothers

Newborn Screening Education: A Survey of Ontario Mothers

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dc.contributor.author Araia, Makda
dc.date.accessioned 2011-10-27T15:40:52Z
dc.date.available 2011-10-27T15:40:52Z
dc.date.created 2011 en_US
dc.date.issued 2011-10-27
dc.identifier.uri http://hdl.handle.net/10393/20333
dc.description.abstract Purpose and methods: Effective parental education about newborn screening (NBS) may help to maximize the benefits and minimize the harms of screening. We investigated experiences, knowledge and opinions regarding NBS education among Ontario mothers. Mothers whose infants recently received NBS were invited to complete a mailed survey (n=1712). Results: Of the 750 participants, 93% recalled their infant receiving NBS, while 69% recalled receiving information about NBS. Of this group, fewer than 50% reported receiving information prenatally, yet a majority of mothers (64%) viewed this as the most important time for education. Those who received information prenatally reported higher satisfaction (OR 2.4). The 40% of mothers who recalled being informed about the meaning of results had higher knowledge about NBS (OR 2.7) and reported higher satisfaction (OR 4.2). Conclusions: Parental education about NBS could place greater emphasis on the prenatal period and on fostering understanding about the meaning of results. en_US
dc.language.iso en en_US
dc.subject Newborn Screening en_US
dc.subject Pre-screening education en_US
dc.subject parental education en_US
dc.title Newborn Screening Education: A Survey of Ontario Mothers en_US
dc.faculty.department Épidémiologie et médecine sociale / Epidemiology and Community Medicine en_US
dc.contributor.supervisor Wilson, Brenda
dc.contributor.supervisor Potter, Elizabeth
dc.embargo.terms immediate en_US
dc.degree.name MSc en_US
dc.degree.level masters en_US
dc.degree.discipline Médecine / Medicine en_US

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